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Identification of Personal Factors in Motor Neurone Disease: A Pilot Study

Authors: Ng L, Khan F

Year: 2011

Source: Rehabilitation Research and Practice 2011:7 pages.

Abstract: Motor neurone disease (MND) is a devastating condition. This preliminary study aims to identify relevant personal factors affecting the experience of living with MND from the perspective of persons with MND (pwMND) in an Australian cohort. A prospective cross-sectional survey of pwMND ( n=44 ) using an open-ended questionnaire identified personal factors that were categorised thematically. Standardised questionnaires assessed disease severity: depression, anxiety, and stress and coping strategies. Personal factors identified included demographic factors (socioeconomic status), emotional states (depression, anxiety, and fear), coping strategies (problem-based coping and denial), personality, beliefs (religious and personal values), attitudes (of the patient), and others (such as perceived support). An understanding of personal factors by treating clinicians is essential in the provision of optimal care in MND. This study may assist in the development of personal factors within the International Classification of Functioning, Disability, and Health for improved consensus of care and communication amongst treating clinicians. Abstract originally from the Hindawi Publishing Corporation. Reprinted with permission under a Creative Commons Attribution license.

Institution: Department of Medicine, Dentistry and Health Sciences, The University of Melbourne, Royal Melbourne Hospital, Poplar Road, Parkville, Melbourne, VIC 3052

Language: English

Subject headings: Neuromuscular disorders, Pilot projects, Rehabilitation, Rehabilitation research, Research methodology

Geographic areas: Australia, Oceania


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